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The family rollercoaster

Well now.... misery loves company as they say. Feel free to skip if you've had enough bad news for today.

Yesterday, I had a very nice evening with friends to take my mind off current events, for which I thank them. Unfortunately today comes around to bite the asses of the entire family.

a) Grandma has to make The Big Decision today: doctors are suggesting a feeding tube into grandpa's stomach. The family thinks it doesn't help anything, but will merely prolong his suffering. Docs probably have a different opinion otherwise they wouldn't suggest it. But in the end, the only one who can say 'yes' or 'no' is grandma. And it's causing her no small amount of stress, as you might imagine.

b) After many tests and almost 15 (!) years of wrong diagnoses and wrong medications, finally a doctor took the effort of wanting to really discover what condition my mother has, instead of suppressing symptoms with Prednison. Today, my mom finally got a name to pin on the medical troubles she's had for so long: Churg-Strauss Syndrom (Dutch - English). Bam. There we have it. First course of action for treatment: Get mom back on the Prednison that's been force-fed to her for all these years. The 'medicin' her body got so used to that she actually had withdrawal symptoms when she stopped using it.

The only positive news today came from dad whose financial advisor has calculated that he can safely retire without having to take a step back financially. But right now money doesn't mean much when your wife is struggling with her health and your father-in-law is slipping away.


( 6 comments — Leave a comment )
Jul. 31st, 2009 12:31 pm (UTC)
Maybe the money doesn't, but the time it frees up can matter a lot since he'll be able to support his wife better and take the time to process these things for himself as well.

But yeah, sorry to hear things are going poorly. I'll keep you in my thoughts and hope for the best possible outcome.
Jul. 31st, 2009 12:58 pm (UTC)
I feel for your grandfather, but I am happy for your mom.

Prednison (prednisolon) is utter crap. I used to take that stuff every day as well and you need to slowly wean yourself off of it even if you're as 'low' as 5mg per day. :/

I hope that now that they know what it is, they can give her something more direct in its effectiveness instead of cortico-steroids.
Jul. 31st, 2009 01:07 pm (UTC)
Did you read the wiki-link on CSS? She has to start taking it again :(
Jul. 31st, 2009 01:52 pm (UTC)
Only just. It still sucks :/ But what I mostly meant with the 'happy' is that there is a name to what she has.
I wasn't happy when they told me what I had, but I was at least glad that they finally pinned a name to it.

Still, I wish you all all the best...
Jul. 31st, 2009 08:53 pm (UTC)
*hugs* Wow.. that's a lot to take in. I hope your grandparents will be all right, eventually. That's the hardest decision ever for anyone...

In a way, it's good news that they finally figured out what your mother has. Now she can be properly treated, right? Prednison is pretty heavy stuff, but the prospect of treatment that actually works is a good thing.
Prednison is very addictive physically, by the way - if you take it for longer that two or three weeks (according to the leaflet I got from the doctor for my allergy), your body stops producing its own normal levels of corticosteroids. So when you stop taking Prednison, your body suddenly doesn't produce nearly enough corticosteroids and you get serious withdrawal symptoms. But that is something your mother should've been informed of before she ever started taking Prednison... if nobody told her about the withdrawal and all the other side-effects, that's pretty bad form from the doctors. :|
Aug. 1st, 2009 04:13 am (UTC)
My "Mom" has been on Prednisone for years and before it was around other steroids. Until she started to take turmeric daily
along with it did she over come her problems. She`s 83 and walks two miles a day.
( 6 comments — Leave a comment )


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